India Stem Cell Therapy for Limb Girdle Muscular Dystrophy

After receiving stem cell therapy in April, a Nahik-based basketball coach can now confidently ride a bus to Mumbai for his appointments without fear that he might lose his balance.

Diagnosed with a Limb Girdle Muscular Dystrophy (LGMD) when he was 19, Saline Salve can now more easily perform his day-to-day activities unlike in the past months when he cannot even apply shampoo to his hair or flip the pages of newspapers.

LGMD, an incurable disorder which affects voluntary muscles particularly those around the pelvic and shoulder region, is caused by the absence of some proteins in the muscles and leads to muscle degeneration.

In the stem cell therapy he underwent, stem cells were injected around Salve’s spinal cord to form the missing proteins in his muscles. The stem cells will reportedly slow down muscle degeneration.

Dr. Nandini Gokulchandran, head of clinical research at Chemur Cinic Neurogen, says patients who receive stem cells therapies also undergo physiotherapy and occupational therapy as part of their rehabilitation. Salve’s routine of throwing basketballs helps mobilize the stem cells to the areas of the body where they are needed, Dr. Gokulchandran adds.

Salve coaches 14 basketball players who were selected for this year’s state team. He can now spend 12 hours in the field instead of the 4 hours he used to spend before he had his stem cell treatment.

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Illegal Stem Cell Treatments in India
28 October 2010

If you are planning to undergo stem cell therapy in India, it might interest you to know that Indian health authorities have not approved most stem cell treatment for patients. The only stem cell therapy approved for clinical application is for bone marrow treatments. The rest are considered illegal.

According to Indian Express, the government has only approved stem cell research activities but some hospitals and clinics are illegally conducting stem cell treatments.

Says Dr V M Katoch, Director General of the Indian Council of Medical Research (ICMR):

“The current guidelines, implemented in 2007 pertain only to research activities. But many leading private hospitals across the country are clinically implementing treatments that are still in the trial stage, particularly for neurological disorders.

Brain tissue regeneration and many umbilical cord blood cell treatments being practised have not been cleared by the Government of India.”

According to the ICMR Director General, his agency is planning to issue a new set of guidelines that deals with stem cell treatment. “The Clinical Establishment Bill, which deals with clinical aspects of treatment and hospital functioning, is likely to be passed in the winter session. This Act specifically deals with practical aspects of stem cell management, defining what is permitted,” Dr. Katoch says.




18 Comments on India Stem Cell Therapy for Limb Girdle Muscular Dystrophy

  1. My husband is facing the problem of limb Girdle Muscular Dystrophy so I am interested in the treatment so can you help me to provide Saline Salve contact details so i can try to get the details of the treatment which can help me to make up my mind for going for such type of treatment.

    your prompt and positive reply can help me to take the decision
    thank you
    Neha

  2. Some veyr near and dear one in my family is suffering from LGMD and I am not able to convince them about the SCT. Please share the contact of Saline Salve, if he will talk to the person concerned he may give his consent for the treatment.
    OM SAI RAM

  3. i am suffering from LGMD from last 10 years….I m on Wheel chair please suggest me whather SCT will be usefull to me or not?….waiting for positive reply

  4. Hi am facing problem same like salvin so i want contact no. For going treatment please send detail of treatment as early as possibe on 9545339656 i waiting for ur response

  5. HI, I’M 22,DIGNOSED WITH LGMD AT THE AGE OF 18.I HAVE TRIED VARIOUS MEDICINES LIKE DYSTRATAX, HOMEOPATHIC MED,AND DOING EXERCISES REGULARLY BUT NOT GETTING DESIRED RESULT.SO I WANT TO HAVE THE TREATMENT AS SOON AS POSSIBLE.MY MOBILE NO. IS 09996057621.
    WAITING FOR A POSITIVE RESPONSE.
    THANQ…..

  6. hi,my name is bichoi from Egypt and I have limb girdle muscular can you help me how can I come for treatment
    Thanks…………….

  7. Hello everyone,
    Just to let everyone know, please do not get too excited about stem cell treatment based on the short article published here. I am a doctor with Limb-girdle muscular dystrophy for the past 6 years and am currently in the US in stem cell research. I came to know about this treatment done in NIMS (where Dr.Gokulchandran works) last year and spoke to their chief. What they are doing is autogenic stem cell treatment which will definitely not produce any significant improvement with LGMD. All effects claimed to be observed were just due to temporary increase in circulation (due to neo vascularization) in the area injected with stem cells. And please understand, if at all the effects are significant, these guys would have published them in atleast one of the reputed medical journals.

    So please do not get carried away on reading about all these articles which are just mere exaggeration.

  8. My name is Marie and I live in Utah. I was diagnosed with LGMD January of 1993 as well as my brother Steve and my sister Karen. My brother suffers from it more so than my sister and I do. Please, please if you will let me know if there is anything to help us. I am sure you all know how scary and frustrating this is to live with. I look forward to hearing from you
    Marie Harris

    Marie Harris

  9. i am 39 year old man from chattisghar ,india and i have taken stem cell treatment at mumbai i can help you plz contact me by mail……………………………………………
    durgadasgupta

  10. Hello everybody
    i m augustin daniel 27year old from mumbai .
    past 5 year i m suffering for Lgmd but i just met a Dr. Neeta Tomar She a Acupuncture Dr. i got some relief from last 2 month i hope u too… this is her contact no 9220556150/8108714108

  11. From 2006, I have been misdiagnosed as a polymyositis patient and have taken various treatments like plasma IVG, cellcept, streoids, methrthreate, etc. I read that Zithromax helped this condition so I took that and it did work. The doctors were not too pleased saying it’s a conventional treatment. From being bedridden, I am walking around as usual with only a bit of difficulty. Only just recently I was told I had this LGMD. So, technically Zithromax had helped my LGMD. I don’t care if it’s proven or not the right way to treat condition. The only thing that matters is that it works.

  12. my fatheris facing the problem of limb Girdle Muscular Dystrophy so I am interested in the treatment so can you help me to provide Saline Salve contact details so i can try to get the details of the treatment which can help me to make up my mind for going for such type of treatment.

    your prompt and positive reply can help me to take the decision
    thank you

  13. I have been diagnose with LGMD for over sixteen years now. I am interesting in doing the stem cell treatment, How many other persons with LGMD have done the treament with proven success and what is the cost?

  14. My two daughter suffering from Limb Girdle Mascular Dystrophy. Any one has information about treatment, kindly let me know the contact address

  15. HELLO,
    SIR AHD MAM
    MY MOTHER SUFFERING FROM LIMB GIRDLE MUSCULAR DYSTROPHY SINCE 19 YEAR . I M INTERESTING STEM CELL TREATMENT . HOW MANY MONEY R EXPEND DURING THIS TREATMENT & TIME PROCEEURE ALSO U TOLD ME
    THANK U

  16. I was diagnosed with LGDM in 2007 and Im still hoping to find a cure or solution to help me. Im hoping someone out there has a heart and will help me find the answers I need, because if I had the answers to every struggling persons problems, I would help without any hesitations because I know how it feels to suffer. PLEASE Contact me to my email and let me know what you find. THANK YOU ! ♥ -Nathalie

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